A Little About Me: 65Roses4PattySue

My name is Patricia Suzanne. I once had a blog called, 65roses4pattysue.com. I go by the nickname, Patty Sue.

65Roses represents a story about cystic fibrosis. I was born with this genetic lung disease at six months of age. I still live with the disease except for one part of my body. My lungs.

My blog was an enjoyable outlet for me to show my family and friends photos and updates on my cystic fibrosis and life. It also was set up to inform those who knew me of a trust fund for my large medical expenses.

Factoid: Cystic Fibrosis is a "chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond." {CFF.ORG}

The predicted median age of survival for a person with CF is in the mid-30s. I am 28.

This life-shortening, genetic lung disease has been a challenge to live with but has also helped me in the development of who I am today. I believe that God created me with a perfect plan, and that nothing in my life has been accidental.

“For I know the plans I have for you, declares the LORD, plans to prosper you and not to harm you, plans to give you hope and a future.” {Jeremiah 29:11}

1 comment: